Home | Blogs | Diagnosis

Diagnosis

idea.nottingham.ac.uk image: Dementia Day to Day blogs banner

Topics: 
communication, men and dementia

The consultant came out to me and when we were in my house, he said, “Have you got anyone here with you?” I said, “No...why? Do I need someone here? Just tell me.”

And then he said, “Well, Paul,... you’ve got early onset Alzheimer’s.” I said, 'No ​no not me.' It was just a total rebuff. "I think you’re wrong, I’m fit as a fiddle. There’s nothing wrong with me."

So the consultant said, "I haven’t been wrong in 24 years." There was a long silence...and that was the start of it all.

For the next two or three weeks I was in total denial, my sons were away then, they weren’t living with me, it was just my girlfriend around, though I was living by myself. So, I just went onto the booze stage. I went to another pub (not our local pub) and I thought, "No, I’m not accepting this."

It’s a bombshell. About two and a half weeks later my mate came along to the pub and he said "Paul, you’re killing yourself. Everybody’s talking about you."

I realised at that point that Mossley Hill Hospital postd​iagnostic group had been phoning me up, but I’d shunned them as I didn’t want to take part in anything. I thought, well I haven’t got it so I’m not sitting around with a load of old dodderers. I’m me, I’m not like them.

But eventually I realised I had to do something, so I went to Mossley Hill and joined up with the postd​iagnostic group. But, I kept it secret. I didn’t tell anybody for 9 months. 

Your comments

You'd be very welcome to leave a comment on this blog post. 

Your comment won't appear straight away as we'll need to check it first: thank you for your patience.

When leaving comments please bear in mind our posting rules.

Add new comment

CAPTCHA
This is for testing whether or not you are a human visitor and to prevent automated spam submissions.

See more like this

Tom Dening

Both hearing loss and dementia become very common as people get older and it is therefore to be expected that a lot of people will have both problems eventually. As readers of this blog will probably know, there are about three-quarters of a million people living with dementia in the UK.

Tom Dening

It is worrying that there appears to be a sharp increase in deaths in the community that are not known to be due to covid-19.

Justine Schneider

There is something apposite about a university – which runs on brain power – becoming dementia-friendly. It recognises that human beings have value beyond their intellectual capacity.  How can an institution whose purpose lies in developing intellectual potential also be dementia-friendly?