Home | Blogs | Negotiating Better Community Support for People with Dementia 1: Getting Started with Alzheimer’s Society Knowledge Exchange Fellowship

Negotiating Better Community Support for People with Dementia 1: Getting Started with Alzheimer’s Society Knowledge Exchange Fellowship

idea.nottingham.ac.uk image: Dementia Day to Day blogs banner

Topics: 
approaches to dementia care, carers, research

I feel very honoured to have been awarded an Alzheimer’s Society knowledge exchange fellowship. With this funding I will be working with colleagues in Netherlands to share expertise about dementia care in the community. Just as importantly, I will be working with stakeholder in East Midlands and across UK to listen to their views and experiences and sharing our ‘academic’ knowledge in ways that can bring benefits to people with dementia and carers.

This project is a collaboration with Dr Marjolein van der Marck, Radboud university medical center at Nijmegen, and funding is from Alzheimer Nederland as well as Alzheimer’s Society in UK. We are pleased to have the support of our supervisors; Prof John Gladman and Prof Tom Dening at University of Nottingham, and Prof Marcel Olde-Rikkert, Dr René Melis and Dr Jenneken Naaldenberg at Radboud umc. We are also working with academic colleagues such as Dr Maud Graff and Dr Fiona Marshall.

Within the project we will share expertise between the two academic centres. Our work has been about understanding needs of individuals and coordinating local community based services to meet these needs. We know this does happen sometimes, and at later stages of dementia, but at earlier stages, we are hearing it can be sporadic and often disjointed. We are also interested in Dementia Friendly Communities and we will investigate whether these initiatives may improve access to support.

We will consult with many stakeholders in community services in both East Midlands, UK and Gelderland, Netherlands. We will also interview people with dementia and their carers. We would love to hear your views or comments on this project. We will also be holding seminars and web-based seminars to share our findings. Please email me neil.chadborn@nottingham.ac.uk or share your views on twitter @nchadborn 

Your comments

You'd be very welcome to leave a comment on this blog post. 

Your comment won't appear straight away as we'll need to check it first: thank you for your patience.

When leaving comments please bear in mind our posting rules.

Add new comment

CAPTCHA
This is for testing whether or not you are a human visitor and to prevent automated spam submissions.

See more like this

Sally

For over two weeks now, I have just given the mail a cursory look each morning, and then put it on the pending pile until I have time to deal with it. Which of course doesn't happen unless I neglect, or can juggle, other things which demand my attention.

Joe

The above question may seem strange to, supposedly, normal and clear minded, non-dementees. However, it is something that occurs to me this day.

Peter Bates

Over the past twenty years, more and more research had been produced in partnership with patients and carers. People who know about illness and disability through living with it day-to-day are teaming up with academic researchers and working on a research project together.